Who’s Your 1 in 100?

Mine is DJ.

November is National Epilepsy Awareness month.  Did you know that 1 in 100 American’s suffer from Epilepsy? So who is your 1 in 100?

Many of us have heard of epilepsy and we “think” we know what to do or what happens when an individual has a seizure… but what you may NOT know is that there are many different forms of Epilepsy and many different types of seizures. What type of seizure an individual is having determines what type of first aid treatment to provide. Be sure to check out the Epilepsy Foundation’s “The Facts About Seizures” so that you are prepared.  After your research test your knowledge by taking the “Get Seizure Smart” quiz.

My cousin’s son DJ suffered from a rare form called Lafora Progressive Myoclonic Epilepsy. Only 11 children in the US and 200 world wide have the condition.  I remember when his first seizure occurred at age of 14.  DJ lost his battle this year at the age of 19, but the beauty is he won the war.  His charismatic spirit had a way of connecting his family, friends, and community.  He helped build awareness, which will help lead to future advancements in finding the cure!  I feel so blessed to have been part of his incredible journey!

If you have a 1 in 100, help spread the message. Get inspired with some ideas from 30 days 30 Ways.

 

Comments

  1. Neene

    I am my own 1 in 100. My diagnosis came as a child but it was phrased differently then in the article linked within. It was described as “time-lapse seizure disorder”. I am blessed to be considered controlled. My heart goes out to your family. I hope this month draws awareness to those who suffer.

  2. Donna Criswell

    Thank you so much for sharing Jannita and Neene.. I actually asked Lance recently where the Discovery “Epilepsy” presence has been recently.. My 1 in 100 is my precious daughter.. Her first grand mal was on her first day of high school, although we then realized she had been experiencing petit mal seizures for a while beforehand. She has no warning signals whatsoever and is ‘controlled’ to roughly 1-3 seizures a year (unless something else is messing with her system – she had about a dozen between last January and April). She is a vibrant, beautiful 33 year old young woman, yet she still lives with us because living alone is too scary. Prince charming has yet to arrive :) My thoughts and prayers go to all who have a loved one with this horrible disorder. You never sleep.

  3. Jannita Demian

    Thanks ladies for sharing!

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